Non-governmental organizations (NGOs)
supporting
20th International EBHC Symposium 2025
Evidence-driven, HTA-proven
October 9-10, 2025 | Krakow, Poland
20th International EBHC Symposium 2025
Evidence-driven, HTA-proven
October 9-10, 2025 | Krakow, Poland
Schedule | Speakers | Gallery | Partners | Honorary Patronate | Conditions of participation | 
Preliminary Programme EN – 1,5 MB
Lista organizacji
- Foundation of Social Education
- The Coalition for Preemies Foundation
- Fundacja My Pacjenci
- The Hope Oncology Foundation
- The Living with Cancer – Oncology Foundation
- Platinum Team
- Fundacja STOMAlife
- Fundacja To się Leczy
- Strong Liver Transplantation Foundation
- Fundacja Urszuli Jaworskiej
- MATIO Foundation for Families and Patients with Cystic Fibrosis
- Ogólnokrajowe Stowarzyszenie Pomocy Chorym na Przewlekłą Białaczkę Szpikową
- Polish "My Kidneys" Association
- Ogólnopolskie Stowarzyszenie Pacjentów ze Schorzeniami Serca i Naczyń EcoSerce
- Onkofundacja Alivia
- Polish Association of the Blind
- Polskie Stowarzyszenie Diabetyków
- Polish Association for Atopic Diseases
- Polskie Towarzystwo Terapii Poznawczej i Behawioralnej
- Polskie Towarzystwo Walki z Mukowiscydozą
- Stowarzyszenie Debra Polska Kruchy Dotyk
- Stowarzyszenie Ehlers-Danlos Polska
- Stowarzyszenie Pacjentów i Przyjaciół Kliniki Kardiologii na Banacha – Serce Na Banacha
- Association of Individuals Afflicted by Civilisation Diseases
- Association for Blood Cancer Patients Aid in Zamość
- Retina AMD Polska
- Stowarzyszenie Zdrowych Miast Polskich
We have been acting for the smallest of the youngest, especially premature babies and their parents, since 2012. We educate, provide families with support, train neonatal teams in terms of communication, initiate activities and conduct a dialogue with decision-makers in order to improve the quality of care over premature babies born in Poland. top
The WE the Patients Foundation was established in 2012 to support the participation of patients in health care decision-making and to provide patient organisations with expertise and thus with the possibility to successfully communicate their problems and needs and to efficiently influence their implementation in health policies run by public administration. The Foundation is a think tank active in heath care, analysing the needs of patients and citizens, providing decision-makers with constructive suggestions of systemic solutions meeting these needs. The aim of the Foundation is to build cooperation platforms between the public administration, patients and patient organisations, doctors, the academia and business in health care. top
https://mypacjenci.org/
e are a Foundation created to help people affected by cancer. We organise various types of activities supporting the cancer treatment of our Patients:
- we raise funds for their treatment,
- we provide social assistance to cancer patients in the scope of: diagnostics, treatment, and cancer rehabilitation,
- we share information about available treatment methods and possible therapies,
- we cooperate with Polish and foreign medical centres,
- we undertake actions aiming at protecting and promoting health,
- we support the activities of scientific associations, we co-organise symposia and conferences – cancer education.
However, the biggest financial effort goes towards helping patients who need paid specialist treatment and who are not able to fully afford it.
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The Living with Cancer – Oncology Foundation supports cancer patients and their loved ones. It operates based on the concept of the patient's experience – in both contacting the care system and building a proactive attitude in the face of treatment. Instead of the “fighting cancer” strategy, it promotes the “living with cancer” approach. Scope of activities:
- Raising funds and supporting the patients under the Foundation's care in terms of diagnostics, treatment, transport costs, and rehabilitation.
- Free-of-charge psychological support (consultations, support groups, helpline).
- Cancer diet consultations and legal assistance.
- Cooperating with foreign medical centres.
- Workshops: lifestyle prevention measures, building a treatment strategy, Simonton method, return to work, yoga, and mindfulness. top
Platynowa Drużyna (Platinum Team) familiarises us with what is rare.The Foundation was created to raise awareness and generate knowledge regarding orphan diseases. We especially address CLN (Batten disease).
What do we do?
- we educate on rare diseases – their role and social and economic significance
- we integrate ability with disability, showing that only together they become whole
- we run rehabilitation and development programmes for children
- we do scientific work in the field of healthcare system management and social security concerning rare diseases
- we cooperate with CLN patient associations from other countries.
Where you can find us?
- Pomeranian Region: Borzytuchom 77-141, ul. Jeziorna 21 (headquarters)
- West Pomeranian Region: Szczecin 71-004, ul. Cukrowa 8
The Foundation has been developing its Network of Platinum Ambassadors acting towards increasing social awareness about rare diseases and the challenges they pose for the families and their surroundings.
Fundacja STOMALife to zarówno ludzie jak i przestrzeń. Dobrzy ludzie i dobra przestrzeń. Przestrzeń, w której wszyscy czują się ludzko i bezpiecznie i gdzie nikt nie jest wykluczony ze względu na niewidoczną niepełnosprawność jaką jest również stomia. Statutowo zajmujemy się szerzeniem wiedzy na temat stomii. Edukujemy, odkłamujemy stereotypy, odpowiadamy na wszelkie pytania. Szkolimy, rozmawiamy i pokazujemy na przykładach, że stomia nie odczłowiecza, że to poważny zabieg, który ratuje życie choć jednocześnie bardzo je zmienia. top
One of the main cornerstones for the establishment of the Foundation was the 2013-2015 campaign “Cancer: You can treat it!” (“Rak To Się Leczy!”). Thanks to the engagement of many people, we managed to spread the positive message that cancer is not necessarily a death sentence, which is why it worth to get tested and not to give up treatment. Statutory objectives of the Foundation include protecting and promoting health, promoting the organisation of volunteer work and the issues of civilisation diseases as well as providing health education to people of different social backgrounds. The Foundation has a free helpline “Lung Cancer – YOU CAN TREAT IT”, holds webinars and workshops for patients with cardiological and oncological diseases, organises support groups and issues reports and educational materials. top
Fundacja powstała z dramatycznych doświadczeń Prezesa – Grzegorza Perzyńskiego, któremu 21 lat temu w ostatniej chwili, w stanie skrajnym, przeszczepiono wątrobę, a także z doświadczeń jego brata, ponad 22 lat po pierwszej transplantacji nerki. Główny celem Fundacji jest działanie na rzecz i w interesie osób około transplantacyjnych – tych przed, jak i po przeszczepie, pacjentów dializowanych, a także podnoszenie świadomości społecznej, co do dawstwa organów oraz przepięknej idei transplantacji, bezpośrednio ratującej życie. Już drugi rok prowadzimy kampanię społeczną pod tytułem “Od przeszczepienia do Ironmana – zostań DAWCĄ będziesz WIELKI” na rzecz podniesienia świadomości społecznej w obszarze donacji organów. W ramach kampanii rozdajemy karty oświadczenia woli wraz z ulotką informacyjną, a także rozmawiamy z potencjalnymi dawcami. Działania te prowadzimy wraz z partnerami – organizatorami dużych imprez masowych, jak choćby seria zawodów Ironman Poland, czy imprezy kolarskie Czesława Langa – Orlen Tour De Pologne Amatorów. Co roku jesteśmy również obecni w strefie NGO na Opener Festival w Gdyni. Działamy aktywnie w Parlamentarnym Zespole ds. Transplantacji, jesteśmy członkiem Rady Organizacji Pacjentów przy Rzeczniku Praw Pacjenta, a także mamy zaszczyt brać udział w posiedzeniach tzw. Okrągłego Stołu Polskiej Transplantologii. Prezes Grzegorz ma również wielki honor należeć do Kadry Narodowej Osób po Transplantacji, z którą nasza Fundacja obecna była na Światowych Igrzyskach w Australii w kwietniu bieżącego roku. top
https://www.facebook.com/fundacjatransplantacja
Urszula Jaworska Foundation has been operating since 1997; it was founded by Czesław Baranowski and Urszula Jaworska – the first patient in Poland to undergo a bone marrow transplant from an unrelated donor.
The Foundation was a pioneer in terms of promoting bone marrow donation by developing the largest Polish Register of Unrelated Bone Marrow Donors (over 11 thousand donors, 34 transplants). Thanks to the educational campaigns and cooperation with clinics, it successfully raised social awareness in this regard. Since 2008, it has been also supporting cancer patients and the chronically ill (MS, hepatitis C, diabetes, sepsis) by creating innovative models of care including, among others, KOSM – the first Polish model of coordinated care for MS patients. It currently implements the hepatitis C treatment programme in prisons, conducts preventive and educational campaigns, supports clinical trials, creates IT applications and cooperates with the Medical Research Agency (ABM). It is involved in social campaigns, conducts workshops, support groups, and training sessions for patients and their families. The Foundation is a member of international organisations: World Patients Alliance, World Hepatitis Alliance, and Global Sepsis Alliance.
Od 2008 roku wspiera także pacjentów onkologicznych i przewlekle chorych (SM, WZW C, cukrzyca, sepsa), tworząc innowacyjne modele opieki, m.in. KOSM – pierwszy w Polsce model koordynowanej opieki dla chorych na SM. Obecnie realizuje program leczenia WZW C w więzieniach, prowadzi akcje profilaktyczne i edukacyjne, wspiera badania kliniczne, tworzy aplikacje IT i współpracuje z Agencją Badań Medycznych. Angażuje się w kampanie społeczne, prowadzi warsztaty, grupy wsparcia i szkolenia dla pacjentów i ich rodzin. Fundacja należy do międzynarodowych organizacji: World Patients Alliance, World Hepatitis Alliance i Global Sepsis Alliance. top
MATIO Foundation has been supporting its members since 1996. It has been co-financing patients’ medicines and equipment as well as raising awareness on cystic fibrosis, an incurable condition, by organising workshops, training sessions, medical and scientific conferences as well as social campaigns. It publishes, i.a., a MATIO quarterly dedicated to the patients, their families and members of the medical community. It organises a social campaign in Poland called "National Cystic Fibrosis Week", and above all, it seeks to introduce systemic changes to the lives of cystic fibrosis patients. The Foundation takes care of as much as 1,800 patients across Poland. top
Stowarzyszenie wspiera osoby chore na przewlekłą białaczkę szpikową (PBS), ich rodziny i bliskich, zapewniając wsparcie informacyjne, emocjonalne i organizacyjne. Prowadzi działania edukacyjne, organizuje szkolenia i kampanie informacyjne dotyczące nowoczesnych metod leczenia białaczki oraz uczestniczy w pracach krajowych i międzynarodowych organizacji zajmujących się zwalczaniem chorób nowotworowych. Stowarzyszenie aktywnie działa na rzecz równego i bezpłatnego dostępu do skutecznych terapii, wspiera osoby starsze i z niepełnosprawnościami, a także rozwija sieć regionalnych kół wsparcia. Jego misją jest reprezentowanie interesów pacjentów hematologicznych oraz budowanie systemowych rozwiązań w obszarze ochrony zdrowia. top
Walczymy o szansę dla każdego chorego! – rozmawiamy – radzimy – pomagamy
Ogólnopolskie Stowarzyszenie Moje Nerki (OSMN, Polish "My Kidneys" Association ) has been active and supporting people with kidney diseases and their loved ones since 2004. It was created as a continuation of the activities of the Polish Association of People on Dialysis, and their renaming in 2022 was aimed at covering a wider group of patients, including at-risk groups. The association conducts educational and preventative activities, while promoting screening tests and transplantation as an effective form of treatment. It is implementing the “MY KIDNEYS” project, which includes organising free-of-charge tests and lectures to increase social awareness on chronic kidney disease (CKD) which affects approx. 4.5 million Poles. OSMN is based on volunteer work; it actively cooperates with national and European partners, while representing the interests of patients and supporting the development of system-wide solutions in healthcare. top
EcoSerce – the National Association of Patients with Heart and Vascular Diseases is a Poland-wide organisation founded by and for cardiac patients and their families. The EcoSerce Association was established in November 2018, but the leaders of the organisation have been working for cardiac patients for many years, keeping an eye on the developments in the Polish healthcare system and reacting to them accordingly. It focuses on supporting cardiac patients through organizing debates and conferences, as well as workshops in towns and cities, as well as informational and educational campaigns. The Association’s principal objectives include advocating for the well-being of cardiac patients and raising public awareness of patient rights as well as fighting for clean air, which is extremely important for those who suffer from heart and circulatory system diseases. top
Onkofundacja Alivia
Onkofundacja Alivia od 15 lat wspiera pacjentów onkologicznych, dodając im odwagi w zmaganiach z rakiem. Działa, aby zapewniać wszystkim równy dostęp do najlepszej opieki onkologicznej. Udostępnia bezpłatne portale takie jak: Alivia Oncoindex, Alivia Onkoskaner, Alivia Onkomapa wspierające pacjentów w podejmowaniu świadomych decyzji dotyczących procesu leczenia. Fundacja broni godności chorych na nowotwory złośliwe wszędzie tam, gdzie łamane są ich prawa. Od 2010 roku przekazała chorym na raka ponad 40 milionów złotych na pokrycie nierefundowanych przez NFZ kosztów leczenia w ramach programu Alivia Onkozbiórka.
Fundacja prowadzi portal moja.alivia.org.pl oferujący pakiet darmowych benefitów oraz spersonalizowanych informacji o chorobie. top
The Polish Association of the Blind (PZN) is the largest organisation of the blind and visually impaired in Poland; it has been operating continuously since 1951. It brings together over 28 thousand members and runs a Polish nation-wide support network including 16 voivodeship units, 281 local units and 24 specialised rehabilitation, educational and care facilities. The Association offers comprehensive care to people with visual impairments – from rehabilitation and counselling, to training and psychological support, including cultural and advocacy activities. It counteracts social and professional exclusion, sets functioning standards for the blind and represents their interests in Poland and abroad as a member of the World Blind Union and European Blind Union.
In 2026,the Association will be celebrating 75 years in business. top
The Polish Diabetes Association (PSD) is a non-governmental organisation which brings together patients with diabetes and their loved ones. PSD has been operating for over 40 years, achieving its statutory objectives through its informative, educational and training activities. The objectives of the Associations include wide-spreading the knowledge and prophylaxis in diabetes, promoting a healthy lifestyle, integrating patients, as well as increased promotion of diabetes-related aspects in the media. top
Polish Association for Atopic Diseases (PTCA) is a non-profit patient organisation, active since 2016. It brings together patients, their caregivers, and doctors versed in the subject of atopic diseases (AD, allergies, asthma, allergic rhinitis, allergic conjunctivitis). PTCA carries out its educational, supporting, and advocating activity by promoting access to advanced therapies. The Association actively participates in HTA processes, clinical trials, and legislative works. It runs Hybrid Atopy Schools and issues a quarterly titled “ATOPIA” and guidebooks for patients. Thanks to its “Healthy Skin Academy” project, it reaches over 120 thousand people. PTCA brings together over 7.5 thousand members and it is one of the most active voices of atopic patients in Poland. top
Polskie Towarzystwo Terapii Poznawczej i Behawioralnej im. Prof. Zdzisława Bizonia (PTTPB, Prof. Zdzisław Bizoń Polish Association of Cognitive and Behavioural Therapy) was created in 1998 as an independent scientific association bringing together professionals actively involved in helping people with mental and emotional disorders, as well as in research and scientific work regarding mental processes.
PTTPB integrates a community of psychotherapists, sets training and certification standards, and actively participates in legislative works regarding psychotherapy and mental health. As a member of EABCT (European Association for Behavioural and Cognitive Therapies), it co-creates European standards in cognitive and behavioural therapy. Currently it has over 6500 members, including 2100 certified psychotherapists and 120 supervisors. top
Polish Society Against Cystic Fibrosis is the largest and oldest non-governmental organisation supporting cystic fibrosis patients and their family members. For more than 37 years we have been striving to improve the quality of life of patients and match it to the European standards. We currently care for nearly 1,500 beneficiaries across Poland.
We help children and adults
We support them by buying medicines, food supplements, specialist food products, and we cover other treatment and rehabilitation costs. We provide free-of-charge rental of medical and rehabilitation equipment.
We advocate for better treatment conditions
We support system-wide solutions and cystic fibrosis treatment centres all across Poland.
We provide rehabilitation
We implement projects of comprehensive rehabilitation, rehabilitation through sport and independent functioning training sessions, financed by The State Fund for Rehabilitation of Disabled Persons [PFRON], local governments and, with own funds.
We educate and raise awareness
We organise workshops, trainings, conferences, online advisory and a free-of-charge helpline. We publish the “Mukowiscydoza” ("Cystic Fibrosis") quarterly (circulation of 2,000 copies). We promote physical activity as a part of therapy by, among others, organising the annual Run for Breath. top
Debra Poland Fragile Touch Association (Stowarzyszenie Debra Polska “Kruchy Dotyk”) has been supporting patients with EB (Epidermolysis Bullosa) for many years. It is a rare genetic skin disease which causes the skin to be extremely fragile and susceptible to damage. Patients living with EB, often called “butterfly children”, require specialist care, state-of-the-art dressings, rehabilitation, and psychological support. The association provides medical and emotional support, organises summer camps with rehabilitation and training, winter integration meetings, as well as social and educational campaigns. It acts for building a community where EB patients are not left on their own, but where instead their needs are noticed and understood. Debra Poland actively increases awareness about EB at schools, universities, and public events, promoting empathy and openness. The new management board has been developing the association's activities, increasing the access to support and raising social awareness. It creates a space where fragility is considered a strength, and the community offers hope and tangible support. top
The Association for EDS patients was created to support and bring together persons affected by this condition. Our main goal is spreading the knowledge on EDS across patients, their families, and doctors. top
The "Heart at Banacha" Association (Stowarzyszenie Serce na Banacha) is an independent, nationwide Polish patient organisation acting for people with cardiovascular diseases and their loved ones. We combine the perspectives of patients, doctors, and decision-makers to improve access to state-of-the-art diagnostics, therapy, and reliable education. We run awareness campaigns, webinars, and surveys which help identify actual patient needs; we also represent patients in system-wide consultations and international initiatives. We support hospitals and cardiology wards through social activities and volunteer work. Our mission is to give practical support in everyday aspects of living with a heart condition and to build a partner-based, data-driven cardiology care – because each and every heartbeat matters. top
Association of Individuals Afflicted by Civilisation Diseases (SPChC, Stowarzyszenie Pacjentów z Chorobami Cywilizacyjnymi) is a new organisation, registered at the end of May 2025. It is an umbrella organisation which will eventually bring together other patient organisations acting in the area of various civilisation diseases. The increasing issue of civilisation diseases constitutes a challenge of the modern world. It forces the creation of new structures of patient advocates which can cooperate with all interested parties in a cooperative way, with expert knowledge, competencies and experience in individual disease entities so that the situation of patients, their caregivers, and whole families improves. First of all, SPChC has decided to take a closer look at unmet needs of the youngest patients with airborne allergies to pollen and house dust mite and of adult COPD patients (chronic obstructive pulmonary disease). The first successes in the scope of advocacy activities organised and coordinated by SPChC will be communicated soon. top
- collecting funds for diagnostic and treatment equipment,
- helping with medicine supplies,
- informing and educating patients and their families on blood cancers,
- improving hospitalisation conditions in the hospital ward,
- promoting bone marrow donation. top
Retina AMD Polska has been supporting those with retinal disorders such as macular degeneration (AMD) and retinitis pigmentosa (RP) since 1998. As an non-governmental organisation, it focuses on educating and supporting patients, as well as lobbying for improved access to advanced ophthalmological treatment.
The association serves as an expert and advocate; it raises awareness about retinal disorders, organises social campaigns, conferences, and awareness-raising initiatives. It cooperates with doctors, scientists and decision-makers, continuously striving for improved quality of care and access to innovative therapies. Retina AMD Polska actively builds a space for dialogue between patients, specialists, and public administration by supporting the development of system-wide solutions supporting eyesight protection. top
The Association of Healthy Polish Cities was founded in 1993. It is a non-governmental association of cities and municipalities, whose City Councils and Municipality Councils, by accepting the Statute, adopted resolutions on joining the Association and took responsibility for the local implementation of the “Health for All” strategy, adapting it to their conditions. Currently (2020), the Association of Healthy Polish Cities includes 39 cities and municipalities with a total population of approx. 6.5 million. Our organisation and member cities implement the Healthy Cities Project launched by the Regional Office for Europe of the World Health Organisation in order to implement the “Health for All by 2000” strategy at a local level. It's aimed at improving the health conditions of Polish cities, i.e. the environmental conditions and the health of their residents. The main goal of WHO is striving to maintain the equity in health principle for the entire society and constant development in this regard. The Association of Healthy Polish Cities maintains continuous contact with the World Health Organisation. It is one of the national healthy city networks which complies with the WHO criteria (is certified by the WHO). According to the National Health Programme for 2016-2020, the Association of Healthy Polish Cities was indicated as the entity competent for cooperation in the area of “Coordination, evaluation and research tasks”. Healthy Cities is a health-promoting action based on cross-sectoral cooperation and including various determinants of health; it is a group of local governments actively supporting the health and quality of life of their residents, becoming a platform for exchanging information and experiences. The range of activities in the member cities is very broad: from health promotion, prophylaxis, activities aimed at the elderly and disabled persons, to environmental protection and creating conditions conducive to health and a healthy lifestyle. The goals and tasks of the Healthy Cities are consistent with the National Health Programme. The Association supports the member cities and municipalities by:
- inspiring and supporting local health-promoting actions,
- facilitating the exchange of experiences between member cities and promoting good practices in the field of cross-sectoral health-supporting actions,
- facilitating access to the World Health Organisation's public health materials
- rozpowszechnianych w ramach współpracy Zdrowych Miat w Europie,
- cooperation with institutions and organisations handling health issues.
We are an open organisation – we encourage cooperation with local government units, non-governmental organisations and institutions. top
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